Morning muscle

Hi everyone!

This morning was particularly hard work, after a rough day yesterday. You know the ones where you wake up feeling like you’ve been hit by a bus, when your brain wants to get up and get on with the day, but your body doesn’t play along – it’s in pain and it won’t move.

I hate these mornings, but thankfully not as much as I used to, because a) they’re happening less b) I now understand why it happens and that it’s just a temporary glitch. Plus, the  insight and understanding of my body means I know how to articulate what’s going on to the world around me, without frustration. And know when to push through the pain and when not too.

Some mornings do require a push, mainly because I have a job to go to and a life I’m enjoying again.  I’m careful not to book morning events or appointments at the weekend, as it’s too much pressure.

For the mornings where a little extra work is needed to get moving and out the door, here are five tips, with love from me to you.

Happy health x

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1. SHOWER POWER

The last thing you want when feeling achy and in pain. Yet, the power of a shower is amazing, both mentally and physically.

Cold showers: Stimulate our immune system, increase our alertness, frees the mind, and tightens the pores on our skin.

Hot showers: Relax our muscles, lowers body tension, helps with migraines, reduces anxiety, and opens pores.

Tips: Get the benefits of both. Have a hot shower, and finish with a colder burst of water.

 

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2. MUSIC MOTIVATION

Next time you have sofa surfing down time, and don’t know what to do with yourself – make a morning play list. Listen to it in the shower and when getting ready; it fills the room and your body with empowering energy. Choose uplifting, happy songs, which make you feel strong and motivated to get on with the day.

Note your favourite morning songs below or on Instagram, and let’s compile our very own Cancer Style Guide play list.

 

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3. WHO’S THAT GIRL?

This is a little game I’ve been playing since my teenage years, to get through anxiety and low confidence issues. I now use it on the days I need an extra helping hand to get moving.

I have a couple of different role models, strong women I admire, who rock the show with spunk and sass.  At times when my strength or confidence is flagging, for whatever reason, I call on one of these women to help me through. And I channel them, in psychological role play.

I often call upon 80’s Madonna when needing to get to social events and don’t feel I can muster the energy. What would Madonna do? Would she cancel and stay in bed. Hell no! She’d put a scarf in her hair, big ear-rings, red lipstick and shake things up. Even only for a couple of hours. So I put on some tunes, get out the lippy, don a little sparkle, and attack the situation with her cheeky fun.

 

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4. VISUALISE THE DAY AHEAD

As tempting as it is to succumb to the pain, or comfort of staying in bed. You know mentally you’ll feel worst for it afterwards. You’ll beat yourself up for not getting to work / appointment  / event.

Whilst lying in bed, try projecting your day ahead. Go into detail; what you’re wearing, eating, doing and feel the joy from being there.

For example, today, I thought about myself at my desk, dressed, and having banter with my favourite colleagues. I was enjoying a cup of hot tea in my favourite mug, and laughing at the general silliness we get up to. It felt good. I started feeling the joy of the day ahead. That joy gave me a split second burst of energy to put my feet on the ground and get into the shower. After that, everything was that little bit easier. The day didn’t disappoint, it was ten times more joyous than the projection exercise.

 

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MINTY FRESH AND REVIVED

And some days all you can do is brush your teeth, and that’s okay. Revive your mouth, wake-up your brain cells with a menthol boost, and feel that little bit more human.

This is more than just looking after your pearly whites. This adds a small healthy habit to your day, that will psychologically help you feel better, and more in control. Looking after yourself, even with something small (that most take for granted) is a form of self-love.

Tip: Have different tooth pastes for different needs. Milder flavours / strengths for the days your mouth is in pain / tingly, and stronger flavours for when you can handle some pow wow.

Pursuit of a toxin free lifestyle

For me, this lifestyle is all about self love.  Giving my body the absolute best I can for long term health and happiness”. 

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I was asked recently why I decided to pursue a toxin free lifestyle.  So, before I open my beauty bag and cleaning cupboard to you over a series of new posts, sharing recommended toxin-free products, I thought I’d give you an introduction as to the why, what and how.

As a cancer survivor, I’m sure this isn’t the first time you’re hearing about someone else’s decision to live toxin free.  I’m also sure you were bombarded with crazy articles and conspiracy theories from friends, which scared you using anything and everything in your home.  Everything from loo paper to toothpaste is going to kill you according to the internet.  If you look hard enough, you will find an article from someone ‘credible’ linking everything to cancer.  It’s even scarier reading this stuff when you’re in the middle of the cancer fight.

There is some truth behind some of these stories.  There are chemicals out there in the everyday products found in our homes, that are classified as carcinogenic which are linked to cancer, endocrine disruption, reproductive toxicity, immunotoxicity, neurotoxicity and allergies.

If you want to read more about carcinogenics: http://www.cancer.org/cancer/cancercauses/othercarcinogens/generalinformationaboutcarcinogens/known-and-probable-human-carcinogens

The good news is, if you want to start eliminating toxins from your life, you can.  It’s daunting, frustrating, and it takes a while, but we’re lucky enough to live in a day and age to have alternatives.

My journey……

avoOne of my favourite childhood memories was watching with intrigue and amazement as my dear dad washed his hair with weird and wonderful kitchen-found products.  There were lemons, olive oil, beer and eggs…not all together, obviously.  And the only way I was ever allowed to use face masks as a teenager was to learn recipes to make them myself….queue, an increase of avocados on mum’s shopping list, not an easy all-year-round find back in the early 90’s.

We grew up in a family that mixed natural methods alongside regular products found in the supermarket.  It’s the same story with household cleaning products, our grannies taught us the powerful benefits on lemons, vinegar and bicarb and we used them alongside Persil, Flash and Mr.Muscle.

That being said, over the years, the preference for convenience, big promises and pretty packaging won over the traditional non-chemical approach learned in my youth, and my adult cupboards became full of toxins and chemicals.

Fast-forward 20 odd years later.

Within days of being diagnosed with the Big C, I had a treatment plan.  I needed an aggressive cocktail of different chemo drugs to shrink the tumour by 15-20% for surgeons to operate.  We have to remember treatment is a choice, and having already seen Steve Jobs waste precious time with natural alternatives on his NET pancreatic tumour, I chose to proceed with pumping my body full of nasty toxic chemicals, knowing I had a small window of opportunity to attack the tumour.  I believe in modern medicine and science as much as I believe in natural remedies – there’s a time and a place for both.  I don’t believe they are mutual exclusive choices either; they can work just as successfully, if not better, hand in hand along the way, through treatment and recovery.

chemotherapy-drugsHaving chosen the chemotherapy road, I decided to make some lifestyle changes along side it and give it all I had. One of those changes was cleaning up my act and reducing the number of toxins I was putting in my body aside from drugs.  Limiting the carcinogenics going into my body, so it could work at its optimum strength to fight the cancer already there.  That was my approach, and not something that was medically backed by the doctors.  Considering how we were raised, turning to toxin-free products and home-made potions felt like the completely natural thing to do.

I remember my sister Georgie kicking things off, calling me in that first week to say she was coming over to pick me up – we were going ‘toxin-free shopping’ at Planet Organic. Whoop! I loved shopping back then.  Whilst waiting for her to come over, I got out a black bag and binned all the washing powders, liquids, sprays and detergents from under the sink.  That was fun and easy peasy.  Then I got to the bathroom cupboard; that bit wasn’t so.  I looked lovingly at all that pretty packaging I mentioned earlier, doing a mental tally of how much those trips to Space NK totaled, sat on the bathroom floor and wept.  How was I going to replace all these gorgeous lotions and potions?  I loved the idea of going clean but I’d spent a lifetime finding the right curling crème for my ringlets, the right moisturising shampoo for bleached damage hair, and the moisturisers and perfumes that made me smell of wild jasmine nights.  How? How was all this stuff going to be replaced?  It was bad enough having chemo, but now I was giving up all the magic products that made me look and feel like me.

I huffed and puffed (and perhaps stomped a little) for the 10-minute drive to Planet Organic. Poor Georgie. She ever so patiently tried to convince me the shelves were stacked with shiny new high performing clean products.  All I could do was remember the smelly, ugly bottled beauty products that lined the shelves in the 90’s health stores.

PO.jpgI silently walked around Planet O (I go quiet when I’m really mad), Georgie excitedly showing me the new health store of the naughtiest, whilst I dragged my feet thinking of my empty bathroom cupboard.  As we turned the corner into the beauty aisle, my heart skipped a beat. What was this?  This wasn’t the health store beauty aisle I remembered. This was a beauty aisle I recognised!  Brands and products I already knew and loved, not realising they were clean and green. This was high-end pretty packaging-ville.  Oh hurrah!  There were no compromises or second rate products here.

We forked out a fair bit to get the staples.  To ease the financial and emotional pressure, we decided to start with the basics and find alternatives for all the other products over time.  We started with; shampoo, conditioner, body soap, hand soap, face moisturiser, body moisturiser, deodorant and toothpaste.

With only the exception on bleach, all the other cleaning products were replaced in the house.  I kept the bleach at the back of the cupboard for emergencies, but that’s since gone too.

Replacing kitchen sprays is straightforward, we’re not as attached to them as we are our shampoo.  However, when it came to personal grooming products, I didn’t fall in love with everything I first tried – but hey, you gotta start somewhere.  There were times I got frustrated, and stressed at not finding ‘clean’ replacements that were high performing or to my taste.  With stress itself being a toxin, I decided to relax, and revert to my old products until I found a good clean alternative to take over.  Once I took the pressure off to do everything in one go, it became a nice adventure amidst the hospital appointments, and over time I’ve slowly found the products that best suit my needs and home.

I’ve seen such evolvement in this area, with regular brands cutting out naughty chemicals, as well as the cleaner alternatives becoming easily available and cost comparative.  You’ll be surprised how much easier it is to find cleaner and natural brands.

My cupboards are pretty much toxin free now and I love it, I wouldn’t go back to the beauty cupboard I cried over years ago.  However, I’ve stayed relaxed about the whole thing, and still happily turn to high performance products every now and then, when a bit of extra help is needed.  Especially in the early days of recovery, when let’s face it, we need a lot of help to get our outsides back to where we want them to be.

Examples of this; I may have a carcinogenic free toothpaste for long term use, but used a few months worth of whitening strips after being bed bound for the best part of a year, and needed to get my pearly whites back to smiling standard.  And don’t get me started on deodorants, there weren’t any natural ones out that could deal with the hormone flushes, so I stayed with Mitchum until they stopped and could comfortably switch to something more natural.

Going clean all in one go is a costly and exhausting exercise, treatment and recovery is hard enough.  My advice is to take it slow, enjoy the ride, and don’t put too much pressure on yourself.  Let the people around you know what you’re doing, so they can help with gifts and recommendations.  Talk to shop assistants and the girls at the beauty counters, they’ll give you great free advice and often samples.  Watch this space and Instagram for recommendations, and soon I’ll be launching an exciting project to help bring you the best products out there straight to your homes.

MEAlthough I’m now cancer free, and treatment is well and truly finished, I continue to pursue a toxin free lifestyle.  Why?  Well, I want to stay healthy and keep the cancer at bay for as long as possible, and my part in that starts with how I treat my body. For me, this lifestyle is all about self love.  Giving my body the absolute best I can for long-term health and happiness.  And on a separate note, but a really important one to raise. Toxins and chemicals feed (CRF) fatigue, a side-effect of cancer therapy, and something I’ve been struggling with.

My body is getting stronger, my gastric system healthier and fatigue better under control.  I attribute that to the lifestyle I’ve been building and a big part of that is living toxin free.  

Toxins to our bodies are not only constrained to products found in bottles, the wrong food and stress can of course be just as toxic.  You’ll find once you start going down this path, you’ll become keen to live cleaner in those areas too.  It’s a snowball affect, it feels so good and healthy, that it’s hard not to want to continue making changes everywhere.  It doesn’t have to be drastic, you don’t have to give up work, turn into a raw food eating vegan and live on a farm.  Again, there are ways to start reducing toxins in all areas of your life, as you continue living exactly where you are.

Living a clean lifestyle for me has been, and still is a slow burn.  Changing over 30 years worth of habits and tastes in one go would have been an impossible task.  But as you start adding the good stuff, the bad stuff starts falling away from your life quite naturally. 

There are loads of ‘detox your body’ / ‘detox your life’ programmes out there, apparently you can do it all in 30 days, 10 days etc.. etc.  Maybe some people can, but I’ve yet to see anyone in the real world do this and keep to it successfully.  As soon as you get back to your real life, or come up against real life challenges, it is scientifically proven that we revert back to old and familiar habits.  The idea is to be clever and create a new normal, one habit at a time, reprogramming your neurological patterns.  I refuse to believe you can change a whole lifetime of eating, shopping, living and working habits in one go or 30 days.  It takes time, work and dedication. But with a relaxed attitude and an appetite for the new, it’s a fun road to take and the benefits make it worthwhile.

I encourage you all, survivor or not, to make the decision to change.

Happy health,

Lulu x

Fatigue: An intro

Happy Sunday!

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How did you enjoy your extra hour today?

For me, Sunday mornings are usually a forced rush out of bed to enjoy as much of Andrew Marr as possible, but this morning I was full of glee to be in front of the TV way ahead of Mr.Marr.  Having said that, it wasn’t a hop, skip and a jump getting there.  I woke up with moderate fatigue, which meant some mental work to get out of bed, and on to the sofa.  Once there, I sat and enjoyed the quiet and stillness of the morning with a mug of hot water and lemon (coffee is a no-no), breathed and had some gentle banter with myself.  That gave me a little more energy to make some porridge and watch a few hours of political programming until my body caught up with my brain.  At which point, it definitely was a hop skip and a jump into the shower (there was a little jig in there somewhere too).  And so my day has turned around with a little patience and kindness.

Five hours later, I am now very much enjoying that Sunday coffee and fulfilling the ambition of the day which was to write.  All it meant was I had to rethink how I spent the morning, give my body the time it needed, some boosting food and most importantly gentle words of encouragement.

This may sound like an easy healthy perspective, but it wasn’t easy to get here. Cancer-related fatigue (CRF) really tripped me up after treatment, it’s no exaggeration to go as far as to say it was a disabling.  It took over a year and a half to fully get control back and be able to enjoy a new normality.  It’s chronic, it’s still there, it’s something I have to manage meticulously every day, and by doing so I’m moving myself further away from it.

Fatigue is one of the biggest and long term side affects across all cancers, one that isn’t fully understood by medical professionals and often under-reported by patients to their specialists.  That was definitely true for me, I accepted it was part and package and never really gave it much time in my conversations with the hospital doctors, I felt there were bigger things which needed their attention.  As a result, I didn’t have any guidance on it apart from some general advice I found on the web.  Without fully understanding how it worked or management techniques, I spiraled to a very dark place, the lowest point in the whole journey.

I was prescribed access to my local Marie Curie centre for physiotherapy, and through that I gained a wonderful team of professionals to start combating this minefield.

Everyone experiences CRF differently, and to different degrees.  It’s caused by different factors; some of the cancers increase your body’s need for energy, which weaken your muscles /  chemo / radiotherapy / medication / anemia / operations / poor nutrition / lack of exercise / hormone therapy / emotional and mental wellbeing.

I have a hormone-based cancer which grew quietly and meant for three years prior to being diagnosed it was robbing me of a lot of energy, and my organs weren’t able to operate to their full capacity, meaning my body went into treatment already quite fatigued.  There were two rounds of chemo, major op and hormone therapy in the space of a year as well as dozens of weird and wonderful drugs, all of which bring fatigue with them.

I learnt enough from the Marie Curie team to start making pivotal changes to combat the fatigue, plus I had amazing daily support from a very special person who ‘got it’.  Even so, I was hostage to this condition mentally and physically until March this year – 1 year and 4 months after all medications stopped.  In March I started taking probiotics which assisted my gastric system and pancreas to start behaving.  Up until this point, I couldn’t keep food in for more then a few days at a time (at best), keeping my body and mind stuck in a state of fatigue and pain. Unable to absorb nutrition properly I was running on reserves constantly, preventing me from putting the building blokes of strength together from the inside out.  I finally find myself in the joyous and very blessed position to be able to that.  I know how very lucky I am to get here and I don’t take any of it for granted.

So that’s my background with CRF, I’d like to start the conversation about how I manage it.  It’s a big subject and will be a common thread throughout my posts, today is just setting the scene really for future conversations.

For those of you who are not recovering from cancer, it’s worth briefly explaining that fatigue and tiredness are two very different things.  In this day and age, we can all relate to tiredness from doing too much and / or not sleeping enough.  With tiredness you still have a fair bit of energy, your muscles feel weak (especially after work), you might feel forgetful and impatient but all in all these symptoms will pass with a good amount of rest (more rest the older you get). 

Apart from a longer list of symptoms, fatigue in contrast, can’t be eased by rest or a cup of coffee, in fact both of these make it far worse. For more information on CRF symptoms, see Macmillan  http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Fatigue/Aboutfatigue/Fatiguecancer.aspx

As well as the mental symptoms, for me it feels like I have been completely zapped of all energy, from my very core.  My limbs feel heavy and hollow and my body doesn’t engage with my brain.  An example of it at it’s worst is waking up from a a healthy sleep, brain fully engaged yet unable to raise my arm to answer the mobile phone on my bedside table.

In my mind’s eye, I see my energy bar like the one computer characters have at the bottom of the screen (or had, I haven’t played a computer game in over ten years).  Like those little characters, if I collect a piece of fruit, my energy goes further into the green and if I get hit by an arrow, it moves it towards the red.  When I dip into the red, the fatigue monster raises it’s ugly head.

Through many crashes, I’ve learned my apples from my arrows, the boosters from the zappers, and how to preserve a healthy green bar.  It’s not about only collecting the apples and avoiding the arrows, on the contrary it’s about balancing them out, making considered choices, keeping you in control.

Apples – energy boosters:

  • Wholesome natural food: fruit, veg, seeds, nuts, herbs and spices. Anything eaten in its natural form unmodified.
  • Additional supplements.
  • A healthy night sleep: between 6 – 8 hours uninterrupted.
  • Water, water, water. Because I can’t stress this enough and something I’m still not great at myself.
  • Rest  – you need to find your balance, as too much will become an energy zapper.
  • Exercise – again, if you do too much of the wrong type at your stage of recovery, it becomes an energy zapper.
  • Being generally active.
  • Relaxation and meditation.
  • Positive people who make you feel lifted after being in the company.

Arrows – energy zappers:

  • Processed food.
  • Caffeine.
  • Sugar.
  • Bad sleep or lack of.
  • Work.
  • Alcohol.
  • Cigarettes.
  • Medication.
  • Healing – inside and out.
  • General illness, like a cold or tummy bug.
  • Stress and anxiety.
  • Too much physical activity.
  • Negative people.
  • General socialising.
  • Too much rest.

I will write a post in November about how I manage the apples and arrows.  From now until then, if you’re suffering with CRF, try keeping a little log each day of:

  • What you eat and drink.
  • How much water you’ve consumed.
  • How much sleep you had and quality (something as simple as one – two – three stars), noting anything particularly disruptive.
  • What you did that day generally, top line, note form.
  • Fatigue levels / notes.

This may sound tedious but it’s a short term exercise that will pay off in the long run, I promise.

I enjoyed doing it at the end of each day, giving me something to do in bed to unwind instead of watching netflix.

This little log will help you see patterns you may have fallen into unknowingly – so you need to be honest with yourself.  It will identify your personal set of apples and arrows, so you can start making changes.

A month may sound like a long time, but it’s not really after everything you’ve been through.  I feel a month truly reflects your lifestyle and habits.  Ideally, and if you enjoy it, I’d highly recommend keeping the log going after you start making the changes enabling you to monitor the positive impact too.  Once you’re in full swing of your energy bar, this log becomes a boring pointless exercise and you’ll be able to put it in the bin.

Most of these energy boosters and zappers need a post of their own, and I will be covering them individually over time.

Wishing you a great evening.

Lulu x